Simama Na Mwanamke Organization Tanzania  ·  Reg. NO: 00NGO/R1/00550  ·  Dar es Salaam, Tanzania
Simama Na Mwanamke Organization Tanzania

SMOTA
Organization

"Creating a better world for families of children with albinism"

Once, the world was not safe for people with albinism. Over the generations, we have witnessed high levels of violence against people with albinism in Africa — leading to fear, trauma, and discrimination for them and their families.

Mother and child with albinism
📍
Based in
Dar es Salaam, Tanzania

✦ Let's join together our hands to create a change ✦

2022
Year Founded & Legally Registered
3
Core Strategies for Change
30+
Regions Served Across Tanzania
What We Do

Our Strategies

Albinism awareness training
1

Albinism Awareness Training

To provide specific albinism awareness training — including how to raise children with albinism — to mothers of children with albinism and their relatives. Education is the foundation of change and acceptance.

Photo: Under The Same Sun

Psychosocial support for mothers
2

Psychosocial Support & Economic Empowerment

To provide psychosocial support to mothers facing threats, stigma, and discrimination — and to lift them out of poverty through income-generating schemes so they can become economically independent and socially confident.

Children accessing education
3

Rights, Health & Education Access

To empower mothers of children with albinism and their children on how to defend their rights and access better health and education services — because every child deserves to thrive in safety and dignity.

Photo: Under The Same Sun

Legal Landmark

Judgement Summary

📄

Judgment Summary App 019-2018 — Centre for Human Rights v. Tanzania

A landmark ruling affirming the human rights of people with albinism in Tanzania. A critical step toward justice and safety.

Vicky Ntetema – Founder, SMOTA
Founder
Message from the Founder

A Vision for Safety & Dignity

Vicky Ntetema

Former BBC Journalist  ·  UTSS Executive Director

We believe every mother and every child with albinism deserves to live free from fear — supported by their community, valued for who they are, and given every opportunity to succeed.

Read the Message →

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Who We Are

About SMOTA

A legally registered non-profit working to protect and empower families of children with albinism across Tanzania.

Mother carrying her child with albinism

Photo: Under The Same Sun

Our Story

Simama Na Mwanamke Organization Tanzania

SMOTA is a not-for-profit organization in Tanzania which was legally registered on 14th June 2022 with registration number Reg. NO: 00NGO/R1/00550, and received full permission to operate towards its mission and vision.

We are headquartered in Dar es Salaam, Tanzania, but run our operations throughout all regions in Tanzania — ensuring we represent and safeguard the rights and wellbeing of families of children with albinism wherever they may be.

SMOTA believes that every person with albinism — and every family that loves them — deserves to live in safety, dignity, and community support.

✓ Legally Registered  ·  Reg. NO: 00NGO/R1/00550

Want to get involved?

Reach out and find out how you can support our mission.

Contact Us →
Our Purpose

Our Mission

To ensure community support for the safety of mothers of children with albinism and their families.

Mother with children in Tanzania

Photo: Under The Same Sun

Why We Exist

Ensuring Safety, Dignity & Support

Our mission is to ensure community support for the safety of mothers of children with albinism and their families.

It is no secret that mothers of children with albinism face immense challenges from their communities. Many mothers have been abandoned by their partners after giving birth to a child with albinism, leaving them to raise their children entirely alone, without support or resources.

These mothers are often wrongly blamed for bringing bad luck to their community or clan — an entirely false and deeply harmful belief. We work to provide them with the support they need, including psychosocial care to help them maintain their wellbeing and reclaim their dignity.

📄 Landmark Legal Case

Judgment Summary App 019-2018 — Centre for Human Rights v. Tanzania. A milestone ruling advancing human rights for people with albinism.

From Our Founder

Vicky Ntetema

Former BBC Journalist · UTSS Executive Director

"We believe every mother and every child with albinism deserves to live free from fear — supported by their community, valued for who they are, and given every opportunity to succeed."

Vicky Ntetema
Where We're Headed

Our Vision is…
To create a safer and freer society

A Tanzania where every mother of a child with albinism lives free from fear, discrimination, and violence — supported, valued, and empowered by her community.

Community in Tanzania

Photo: Under The Same Sun

Our Three Pillars

Built on Safety, Community & Empowerment

Safety for children with albinism

🛡️ Safety

Protecting families of children with albinism from violence, threats, and discrimination across all regions of Tanzania.

Community support

🤝 Community

Building strong, informed communities that embrace and uplift people with albinism and their families.

Photo: Under The Same Sun

Empowerment through education

✊ Empowerment

Equipping mothers and families with tools, knowledge, and confidence to defend their rights and thrive.

Share Our Vision

Help us build a safer, freer Tanzania for every family.

Get In Touch →
Voices of Courage

Our Hero Stories

Behind every statistic is a person. Here we honour the mothers and children who show extraordinary courage every single day.

A powerful portrait

A Mother's Courage

Stories of resilience from mothers raising children with albinism across Tanzania will be shared here soon.

Smiling mother and child

Joy Against All Odds

How families across Tanzania are finding hope, community, and a path forward despite immense challenges.

Mother and child

Voices for Change

Advocates and survivors speaking out to build a safer world for the next generation.

Photo: Under The Same Sun

Share Your Story

We are gathering stories of strength and resilience from families across Tanzania. If you would like to share your story, please reach out.

Share Your Story →